SYNTHEMA consortium reviews progress and plans final year in San Sebastian
The consortium of the SYNTHEMA project convened in San Sebastian, Spain, on 4 and 5 November 2025 for its third anniversary meeting and to begin coordinated work on the final year of the project. All partners met to review progress and to define priorities linked to secure, AI-powered health data for rare haematological diseases.
Across two full working days, consortium members presented updates from all work packages, followed by structured and engaged discussions. These exchanges focused on assessing what has been achieved to date and on identifying concrete steps required in the months ahead. Particular attention was given to aspects of the project that will require closer coordination during the final phase, ensuring consistency across technical development, research outputs, and governance.
A central part of the discussions concerned alignment with Open Science principles. Partners examined how existing and forthcoming outputs can be made accessible, transparent, and reusable, while maintaining strict standards for data protection and privacy. This focus remains essential to the project’s objective of enabling trustworthy research environments for rare haematological diseases through advanced synthetic data generation and federated approaches.
Looking ahead, the consortium agreed on several key outputs for the final year. These include the preparation of a comprehensive recap publication on synthetic data generation in haematology, the development of a joint training programme with ERN-EuroBloodNet on synthetic data and its applications in haematology, the publication of additional scientific papers, and the launch of the SYNTHEMA platform. Each of these activities is intended to support both the research community and clinical stakeholders working with rare haematological diseases.
The consortium extends its thanks to Vicomtech for hosting the meeting, with special recognition to Andoni Beristain, Ion Gorriti Echeverria, Mikel Hernández Jiménez, and Imanol Isasa Reinoso for the organisation and coordination that ensured a productive and well-structured event.