Partnerships that matter
16 partners in 10 countries
16 partners in 10 countries will join forces to push the boundaries of synthetic data in rare hematological diseases.
SYNTHEMA also enjoys the support, resources and active participation of ERN-EuroBloodNet, as the European Reference Network on rare hematological diseases (RHDs) concentrating 103 highly specialised multidisciplinary healthcare teams in 24 Member States.
The platform will contribute to existing data registries such as the European Rare Blood Disorders Platform (ENROL), the European Platform on Rare Disease Registration (EU RD Platform) and the Rare Anemia Disorders European Epidemiological Platform (RADeep) with data standards, pipelines and shareable data assets.
SYNTHEMA will connect health data centres, academic research centres, industries and SMEs to advance transnational and clinical research and care in RHDs. All in all, ERN-EuroBloodNet and ENROL constitute the perfect environment for SYNTHEMA and the creation of a cross-border health data hub for RHDs, as the space to develop and validate innovative AI-based techniques for clinical data anonymisation and synthetic data generation.
The platform will contribute to existing data registries such as the European Rare Blood Disorders Platform (ENROL), the European Platform on Rare Disease Registration (EU RD Platform) and the Rare Anemia Disorders European Epidemiological Platform (RADeep) with data standards, pipelines and shareable data assets.
SYNTHEMA will connect health data centres, academic research centres, industries and SMEs to advance transnational and clinical research and care in RHDs. All in all, ERN-EuroBloodNet and ENROL constitute the perfect environment for SYNTHEMA and the creation of a cross-border health data hub for RHDs, as the space to develop and validate innovative AI-based techniques for clinical data anonymisation and synthetic data generation.
Ethical and Legal Advisory Board (ELAB)
Federica Russo
Professor at Utrecht University
Expert in the philosophy of science, technology and information
Expert in the philosophy of science, technology and information
Magdalena Kogut
Lawyer
Expert in privacy/IP/IT Law
Expert in privacy/IP/IT Law
Kathrin Creswell
Senior Lecturer at the University of Edinburgh
Expert in societal and other impacts of technology in healthcare, with a focus on AI
Expert in societal and other impacts of technology in healthcare, with a focus on AI
Meet the Team
Hematological diseases are a large group of disorders resulting from abnormalities in blood cells, lymphoid organs and coagulation factors.
They suffer from a relatively low number of patients and the prevalence of data silos in unconnected clinical sites and registries.
SBA
Austria
SYNTHEMA Partners with Flower
SYNTHEMA is proud to partner with Flower, a leading federated learning framework, to pioneer advancements in healthcare data privacy and analytics.
This collaboration is set to transform the field of rare hematological disease treatment by integrating decentralized machine learning models while safeguarding patient data privacy.
With Flower’s cutting-edge technology, SYNTHEMA will strengthen its platform, benefiting from enhanced data security and expert guidance, while contributing valuable insights to the open-source community.
This collaboration is set to transform the field of rare hematological disease treatment by integrating decentralized machine learning models while safeguarding patient data privacy.
With Flower’s cutting-edge technology, SYNTHEMA will strengthen its platform, benefiting from enhanced data security and expert guidance, while contributing valuable insights to the open-source community.
