16 partners in 10 countries
16 partners in 10 countries will join forces to push the boundaries of synthetic data in rare hematological diseases.
SYNTHEMA also enjoys the support, resources and active participation of ERN-EuroBloodNet, as the European Reference Network on rare hematological diseases (RHDs) concentrating 103 highly specialised multidisciplinary healthcare teams in 24 Member States.
The platform will contribute to existing data registries such as the European Rare Blood Disorders Platform (ENROL), the European Platform on Rare Disease Registration (EU RD Platform) and the Rare Anemia Disorders European Epidemiological Platform (RADeep) with data standards, pipelines and shareable data assets.
SYNTHEMA will connect health data centres, academic research centres, industries and SMEs to advance transnational and clinical research and care in RHDs. All in all, ERN-EuroBloodNet and ENROL constitute the perfect environment for SYNTHEMA and the creation of a cross-border health data hub for RHDs, as the space to develop and validate innovative AI-based techniques for clinical data anonymisation and synthetic data generation.
Hematological diseases are a large group of disorders resulting from abnormalities in blood cells, lymphoid organs and coagulation factors.
They suffer from a relatively low number of patients and the prevalence of data silos in unconnected clinical sites and registries.